My Story - sharing my background and incurable brain cancer diagnosis and ongoing updates
In January, 2024, I shared "My Story" as a ten
page .pdf (7.5 pages of 'story' with 1.5 pages of cited references) as a way of
covering questions many close to me had already asked, and more that some might
have found it difficult or awkward to ask.
I shared the .pdf on Facebook, Twitter, and over email and similar, and
started engaging more with the broader Brain Tumour community.
While reading others' experiences in shared groups and on published blogs, I realized that a blog format will be a better way of capturing my evolving story. In February, 2024, this led me to adding a Blogger blog, here at https://oligostu.blogspot.com/, and I've begun by splitting that January .pdf into a few posts to get started. I've back-dated this and the first few posts to line up with when I began sharing my story, and will see soon how frequently I share updates, as the story develops.
My initial shared .pdf is now captured in my first four blog posts:
- My Story - Intro
- About my symptoms and diagnosis
- My surgery and recovery period
- Why now is an exciting time for Low Grade Gliomas
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